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Welcome to AFF
About AFF
Welcome to Aspies for Freedom

This site has autism forums, aspergers forums, autism chat room, articles and lots of information in the autism wiki. Anyone can join, and members of the autism parents community are welcome.

Aspies for Freedom began in June 2004. We have the view that aspergers and autism are not negative, and are not always a disability. This was a new concept to many people, but since we started the idea has spread further and now we are joined by many people who share the same positive view. It was called Aspies for freedom as the founders were all aspies, though the group is for anyone with autism, asperger's or any spectrum condition. We know that autism is not a disease, and we oppose any attempts to "cure" someone of an autism spectrum condition, or any attempts to make them 'normal' against their will. We are part of building the autism culture. We aim to strengthen autism rights, oppose all forms of discrimination against aspies and auties, and work to bring the community together both online and offline.

About this site
Our aims are as follows:

  • To prevent eugenic elimination of autistic people by opposing pre-natal testing for autism.

With the right support services in place, all autistic people are capable of living meaningful and fulfilling lives. However, negative media coverage and deliberate pity campaigning have created the public opinion that autism is a "tragedy", and that people with autism have no hope of achieving anything. As such, the availability of a pre-natal test would cause the majority of autistic people to be aborted.

A recent study has shown that 91-93% of fetuses that test positive for Down Syndrome are aborted. As autism is genetic, if these figures were similar for a pre-natal test for autism, the autistic population would be decimated, and autistic culture would be destroyed.

Also, the majority of autism fundraising currently supports genetic research. If this money were to be channelled into support services, autistic people would have a much greater chance of living productive lives.

As such, Aspies For Freedom advocates against funding for genetic research that would lead to a pre-natal test.

  • To oppose physically or mentally harmful "treatments" targeting autistic people.

Due to the public perception of autism, a large number of unethical treatments have become quite common. These include physically harmful treatments (such as aversive behavioural therapies or restraints), mentally harmful treatments (such as 20-40 hr/week ABA, restriction of non-harmful stimming and other autistic coping mechanisms), dangerous non-medically approved therapies based on discredited theories or religious beliefs (such as chelation or exorcism), and therapies that would be called "torture" if they were used on non-autistic children (such as the electroshock "behavioural" devices).

Aspies For Freedom advocates the removal of all physically or mentally harmful therapies.

  • To emphasise the "spectrum" view of autism, and de-emphasise the differences between the various autistic spectrum labels.

There are several different labels used for people throughout the autistic spectrum. These include "High Functioning" autism, "Low Functioning" autism, Asperger's Syndrome and PDD-NOS. The differences between these labels are often quite blurry, and are often based around childhood development, which has little bearing on the nature of an autistic adult.

One of the largest barriers to accessing support service is the use of sub-groupings to assign support, rather than assessing the needs of the individual. This means that, for example, someone with "high functioning" autism may be denied needed housing support due to the label, whereas someone with "low functioning" autism may be deemed unfit for activities of which they are entirely capable.

The autistic spectrum covers a very wide range of people, and these people don't always fit neatly into the available groupings. Often these groupings are barriers to understanding, rather than tools for understanding. Essentially, the people in all the above groups are all a part of the autistic spectrum, and generalisation of the specific groups within the spectrum is counterproductive. The personality and needs assessment of a person on the spectrum should be looked at on an individual basis, rather than on the basis of a label.

As such, Aspies For Freedom supports the spectrum view of autism, and advocates the de-emphasis of differences between the autistic spectrum labels.

  • To oppose the idea of an autism "cure".

Part of the problem with the "autism as tragedy" point of view is that it carries with it the idea that a person is somehow separable from autism, and that there is a "normal" person trapped "behind" the autism.

Being autistic is something that influences every single element of who a person is - from the interests we have, the ethical systems we use, the way we view the world, and the way we live our lives. As such, autism is a part of who we are.

To "cure" someone of autism would be to take away the person they are, and replace them with someone else.

Also, funding for "cure" research is unlikely to ever produce a result. In the meantime, support services for autistic people are underfunded. This money would be far better used to help existing autistic people.

The cure mentality also influences cultural treatment of autistic people. Many parents focus on the idea of finding a cure for their child, and may neglect actual help and support in the process. Also, teaching children that they are "broken" and need to be "fixed" has long-term consequences for their mental health.

Aspies For Freedom opposes the idea of an autism "cure", as a real cure would be unethical, and the current myth of the cure is harmful.

  • To evaluate alleged treatments for ethical approaches.

One of the problems with the current state of autism treatments is that there is little in the way of quality control, and often a suggested treatment is commenced without thought for the ethics involved. Some example of unethical practices include the use of aversives (e.g. "behavioral" physical harm, denial of food, deliberate triggering of sensory overloads), unreasonably long hours (e.g. many people advocate 40hrs/week of ABA), potentially dangerous treatments (e.g. chelation), and focusing on "normalisation" rather than help (e.g. restricting non-damaging autistic behaviors, such as stims).

Aspies For Freedom seeks to assess the ethical dimensions of new and existing autism treatments.

  • To increase funding for, and access to, autistic support services and ethical forms of treatment.

Many forms of treatment are highly beneficial to many autistic people - For example, speech therapy, sensory integration therapy, and general counselling. Also, ongoing support services can help people live more productive lives - for example, emergency housing, specialised medical services, and employment support services.

Aspies For Freedom advocates increased funding for support services, and supports the fundraising efforts of support-based autism charities.

  • To oppose negative publicity campaigns against autistic people as a group.

The majority of autism fundraising is currently generated using "pity" campaigning, suggesting that autism is tragedy, disease, or epidemic that needs to be stopped. Unfortunately, this point of view has propogated itself through to talk shows, news stories, and other forms of media coverage.

The usual technique is to show nothing but footage of (presumably) autistic children having tantrums, and then footage of parents complaining about their lives. It is very rare to see footage of an autistic child engaged in ordinary activities, and even rarer to see footage of an autistic adult.

This "tragedy" view of autism is extremely damaging to autistic people, far beyond the scope that any funds generated could justify. It causes employment discrimination, it worsens social isolation, and it leads some parents to give up on helping their children, in favour of holding onto a false hope of a cure.

Some organisations take this even further, using phrases such as "soulless", "worse than cancer", or "incapable of love". One of the biggest anti-autistic organisations, Autism Speaks, even went so far as to create a propoganda film in which a woman talks about wanting to drive herself and her autistic child off a bridge. This statement was made while her autistic child was in the same room.

These campaigns are based on stereotypes, prejudice, and deliberate misrepresentation, and they need to be stopped.

Aspies For Freedom advocates an end to pity campaigning, and an end to misrepresented or false media stories.

  • To help promote an accurate yet positive image of autism.

One of the aims of the site is to help create a more positive view of autistic people, by showing the things we actually do, and emphasising positive stories about autistic groups and people. Autistics are a very diverse group, and our differences are a very valuable part of human diversity.

The reason for including the word "accurate" is that, although autistic people have achieved great things in art, science, mathematics, writing, and other creative endeavors, it is often the case that this is exaggerated to say that all autistics are geniuses - which has the unfortunate side effect of suggesting that an autistic person needs to be a genius to be considered a worthwhile human being.

Another extreme is the desire of some groups to ascribe mystical qualities to autistic people, which has the side effect of dehumanising autistic people.

Autistic people are everywhere. There's a good chance that you work with or know an autistic person without realising it. Autism isn't a tragedy, or a side-effect of genius - it's a difference to be valued.

As such, Aspies For Freedom attempts to destroy stereotypes to create a positive and realistic idea of what it means to be autistic.

  • To oppose all forms of prejudice and bigotry.

Many problems associated with autism are caused, or worsened, by prejudice. The root of this is prejudice itself - if we deal with only the forms of prejudice that currently relate to autism, another form of prejudice will rise up to replace them.

Because of this, Aspies For Freedom chooses to oppose all forms of prejudice and bigotry.

It includes forms of bigotry related to autistic culture, such as:

  • The idea that being neurotypical (i.e. not autistic, or another psychological neurotype) is "better" than being autistic. (Note: this doesn't relate to talking about specific abilities, just to the idea of general "betterness")
  • The idea that being autistic is "better" than being neurotypical. (Note: again, this doesn't relate to talking about specific abilities, just to the idea of general "betterness")
  • The idea that some labels on the autistic spectrum are acceptable, but others are tragedies.
  • The idea that Asperger's Syndrome or PDD-NOS shouldn't be part of the autistic spectrum.
  • The idea that people have no right to self-identify as autistic

Recent news
  Changes to Avatars
Posted by: Pikajedi3 - 05-05-2010 12:55 AM - Replies (27)
0Hey,

I've implimented a limit of 200x150px for avatars; if your avatar is over that limit, you have the choice of either removing it and resizing it, or I'll remove it until you resize.

To resize if your image host is photobucket;

take the "direct link" line from below the image, or right click it and select "copy image location"

Switch the upload source to web, and then click options. Pick a setting below 200x150px.

copy the URL and click upload.

If Photobucket cannot resize to the dimensions you want, or Photobucket is not your image host, right click the image and select "copy". Open Paint (or your equivalent), paste it in and resize it to below 200x150px.
 

  Ari Ne'eman's nomination to NCD on hold (posted obo adriant.esq)
Posted by: Marcia - 03-28-2010 07:43 PM - Replies (61)
0I'm posting this thread for adriant.esq as he's keen to have us see this, but doesn't know how to post a new thread.  Smile

http://www.nytimes.com/2010/03/28/health...utism.html

Nominee to Disability Council Is Lightning Rod for Dispute on Views of Autism
By AMY HARMON
Published: March 27, 2010

When President Obama nominated Ari Ne’eman to the National Council on Disability, many families touched by autism took it as a positive sign. Mr. Ne’eman would be the first person with the disorder to serve on the council.  

But he has since become the focus of criticism from other advocates who disagree with his view that society ought to concentrate on accepting autistic people, not curing them.

A hold has been placed on Mr. Ne’eman’s nomination, which requires Senate confirmation. Whether the hold is related to the criticism of Mr. Ne’eman (pronounced NAY-men) and what it might take to lift it is unclear.

But Mr. Ne’eman, the 22-year-old founder of the Autistic Self-Advocacy Network, seems to be a lightning rod for a struggle over how autism will be perceived at a time when an estimated 1 in 100 American children and teenagers are given such a diagnosis.

Mr. Ne’eman is at the forefront of a growing movement that describes autism as a form of “neurodiversity” that should be embraced and accommodated, just as physical disabilities have led to the construction of ramps and stalls in public restrooms for people with disabilities. Autism, he and others say, is a part of their identity.

But that viewpoint, critics say, represents only those on the autism spectrum who at least have basic communication skills and are able to care of themselves.

“Why people have gotten upset is, he doesn’t seem to represent, understand or have great sympathy for all the people who are truly, deeply affected in a way that he isn’t,” said Jonathan Shestack, a co-founder of the advocacy group Autism Speaks, whose mission is to help finance research to find a cure.

Mr. Obama’s seven other nominees to the council were confirmed this month. But parliamentary procedure in the Senate allows one or more members to prevent a motion from reaching the floor for a vote by placing an anonymous hold on the action, which an official with knowledge of the proceedings said had been done in Mr. Ne’eman’s case.

The hallmark of autism is impaired social interaction, but the disorder can take an array of forms. Some people may hurt themselves or be unable to speak. Others may be hyperarticulate but unable to parse body language or facial cues. Some may have cognitive disabilities; others may have savant skills.

Mr. Ne’eman declined to be interviewed, citing the pending action on his nomination. But in previous interviews with The New York Times and other publications, he has argued that those most severely affected by autism are the ones who benefit least from the pursuit of a cure, which he suggests is unattainable anytime soon. Instead, he says, resources should be devoted to accommodations and services that could improve their quality of life.

Historically, the kind of genetic research supported by many parents of children with autism, Mr. Ne’eman has said, has been used to create prenatal tests that give parents the ability to detect a fetus affected by a particular condition, like Down syndrome, so that they can choose whether to terminate the pregnancy.

“We just think it makes more sense to orient research to addressing health problems or helping people communicate rather than creating a mouse model of autism or finding a new gene,” Mr. Ne’eman has said.

A senior majoring in political science at the University of Maryland, Baltimore County, Mr. Ne’eman himself has a diagnosis of Asperger syndrome, a form of high-functioning autism.

Mr. Ne’eman, who grew up in East Brunswick, N.J., has said his condition caused him to be bullied in high school. His social anxiety was so great, he sometimes picked at his face until it bled. He was eventually transferred to a school for students with developmental disabilities.

He founded his self-advocacy organization, which has grown to have several chapters across the country, in 2006, and he served on New Jersey’s Special Education Review Commission, where he wrote a report calling for legislative action to end the use of aversives, restraint and seclusion on students with disabilities.

Mr. Ne’eman also became a critic of Autism Speaks, the largest advocacy group in the country, organizing protests last fall over a fund-raising video.

But the split among autism advocates, suggests Lee Grossman, director of the Autism Society of America, may simply reflect the unmet needs of a growing population, for both research into potential treatments and for programs to support jobs and independent living.

“We have this community out there frustrated and bewildered and reaching out for any assistance, and that makes us battle-hardened,” Mr. Grossman said. “We need to reframe the discussion. From our perspective, it’s great to have a person on the spectrum being nominated to this committee.”

A version of this article appeared in print on March 28, 2010, on page A16 of the New York edition.
 

  Federal Investigation of Judge Rotenberg Center
Posted by: Bonnie Ventura - 03-04-2010 06:25 PM - Replies (23)
Last week the U.S. Department of Justice began an investigation of the Judge Rotenberg Center for civil rights violations.  The federal investigation came in response to a letter from numerous disability rights organizations, including the Autism National Committee and the Autistic Self Advocacy Network, describing the horrific abuses at JRC.

More details here:

http://motherjones.com/mojo/2010/02/scho...estigation
 

  New video on AutTV youtube channel
Posted by: Gareth - 04-12-2009 10:35 AM - Replies (15)
A new video has been posted to the AutTV channel, parodying the attitude of autism speaks:
http://www.youtube.com/watch?v=xz2X8f15x5k
 

  Statement on Gary McKinnon
Posted by: Gareth - 11-09-2008 12:51 PM - Replies (156)
Several people within our community and the media have been rallying around the case of Gary McKinnon - a cracker who broke into US military, academic and NASA servers due to his belief in a UFO coverup.

Many rallying around this cause have drawn attention to the issues of extradition and fair trial issues - this is something that it is not my place to comment on. However, many have taken to portraying this as an autism rights issue:



As far as I am concerned, anyone promoting this as an autism rights issue is damaging our cause - by implying that Gary should be given different preferential treatment due to his diagnosis of aspergers they are automatically implying that aspergers/autism makes him less culpable for his actions. I have seen many such comments along the lines of "he has aspergers, go easy on him" in petitions related to this.

When so many media stories have portrayed aspies as violent criminals unable to control their actions, or as incapable of thinking through the consequences of their actions, this kind of activity does immense harm.

Every time an autistic individual is claimed to be unable to control their actions in criminal cases, this increases prejudice against all of us.

Gary's case may have issues relating to unfair extradition and related matters that would apply to someone of any neurotype - these matters are ones that should be drawn to the attention of the authorities. His diagnosis should not have any relevance.

A closing thought:
If Gary was black would we see the "london black civil rights movement" protesting his extradition? If he was gay would we see gay rights protesters?
 

  Genetics Study links Autism to timing mechanisms
Posted by: Gareth - 03-07-2007 06:30 PM - Replies (43)
We recently got sent a press release from the university of bangor:

Genetics Study links Autism to timing mechanisms

Although autism has previously been recognised as a genetic disorder, new work has, for the first time, identified two specific interacting genes that appear to be involved- and the results may seem unexpected.

Research by scientists in Wales reported in Molecular Psychiatry (advance online issue 30th Jan 07) has identified that Autistic Disorder is associated with two genes involved in timing and biological clocks: per1 and npas2.

Cross species research shows that these two clock genes regulate timing mechanisms that control such things as sleep cycle, memory and communicative timing, a less familiar concept.  The work, identifying a link between autism and these clock genes, was led by Dr. Dawn Wimpory, Lecturer-Practitioner/Consultant Clinical Psychologist for Autism, practising with the NWWales NHS Trust and Bangor University.  She collaborated with Bangor University colleagues in both the School of Psychology and the North West Cancer Research Fund Institute (NWCRFI), together with Professor Michael J Owen’s team from Cardiff University’s Department of Psychological Medicine.

Dr. Wimpory’s clinical work and observations of the lack of social/communicative timing in Autistic Disorder was complemented by colleague Brad Nicholas of The NWCRFI suggesting that clock genes may be involved. This idea waited many years to be tested but new information from the human genome project, developments in the field of biological clocks and the construction of autism gene banks has recently allowed the experiment to be carried out.
Autistic Disorder is characterised by three areas of abnormality: impairment in communication (verbal and non-verbal) and reciprocal social interactions together with a markedly restricted repertoire of activities and interests, all in evidence before three years of age. (Autistic Spectrum Disorders or ASDs include milder and more varied related difficulties.)  Dr. Wimpory works on the hypothesis that a deficiency in social timing contributes greatly to the difficulties faced by people with Autistic Disorder.

“Timing is quintessential to normal infant development. In Autistic Disorder, malfunction of adaptive timing may lead to a cascade of other developmental problems. In the first few months an unaffected infant can take part in social exchanges, sharing eye contact and babbling in what we’d recognise as ‘natural’ communication patterns.  This facility for preverbal communication appears lacking or diminished in Autistic Disorder,” explains Dr. Wimpory.

It is through such preverbal communication that an unaffected infant anticipates and predicts others’ behaviour, progressing to increasingly sophisticated social participation, for example, in teasing exchanges. Mutually enjoyable preverbal teasing games (e.g. ‘peep-bo!’) are timing-dependent.  They appear as an early stage in the development of empathy and social pretence. Empathy and pretending are among the life-long difficulties for individuals with Autistic Disorder. These may be developmentally linked to early difficulties in synchronising with the inbuilt rhythms of communication including eye-contact.

The study analysed genetic markers in 11 clock related genes from 110 individuals with Autistic Disorder and each of their parents (avoiding the more varied ASD subjects and those with additional substantial learning/intellectual impairments often included in autism genetic studies). The results showed that markers in two of the genes, npas2 and per1, had significant association with Autistic Disorder. These two genes had already been identified as regulating complex emotional memory, communicative timing and sleep patterns in the mouse and the fruit fly; organisms that are used by scientists to study the role of clock genes. Problems in sleep, memory and timing are all characteristic of Autistic Disorder; each may play an important role in its development.

“Autism is a disorder of complex inheritance where several interacting genes may be involved.  This is the first autism study to identify interacting genes, it is also the first to identify genes that regulate behaviour recognised as affected in autism: timing and memory. It adds further evidence for the role of the biological clock in autism”.

The research was funded by the Baily Thomas Charitable Fund with additional support from Autism Cymru; the researchers now intend to replicate their study with a larger sample.
 

  First 2007 meeting tomorrow
Posted by: Gareth - 01-02-2007 10:34 AM - Replies (20)
The first meeting of 2007 is being held tomorrow at 9PM GMT as always. That's the 3rd janurary. I hope to see you all there.......
 

  New server, new software
Posted by: Gareth - 01-02-2007 10:33 AM - No Replies
As you know, we have now ordered the new server and the site has been moved over. Next to come is the new software (quite late in arriving I admit). The bug that caused threads on the forums to merge has been fixed and was indeed a problem with the old phpBB database. The Trac bug tracking and project management system will be installed ASAP as well as Asterisk. This will allow volunteers to aid in developing the blogs (which must be integrated with the forum). Various of our other sites also need to be moved over to the new server. Watch this space......
 

  Blogs (hopefully) coming soon
Posted by: Gareth - 12-08-2006 01:41 AM - Replies (5)
Amongst other things, blogs to act as campaign diaries will be coming soon if we can raise the money. Please see the results of this month's meeting if you would like to see this happen and help out.
 

  Adding new content etc
Posted by: Gareth - 12-04-2006 09:15 PM - Replies (6)
While the site is new, i've opened the forums again and working on adding the old content and other features, so any broken links or other bugs please feel free to report to me.
 

  New Site
Posted by: Gareth - 12-04-2006 01:05 AM - Replies (9)
We have been working on implementing a new site to resolve problems with spam and malacious use with the previous site. The new software has a lot more features which will enable us to to do a lot more with the site and at time of writing I am preparing to relaunch with updated policies and content.